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I am Luann Johnson, the Patient
Advocate at the Center for Applied Reproductive Science. One
in six couples is infertile and the stress of coping with
this disease is often likened to a roller coaster ride. Patients
become hopeful one day only to crash down the next. They express
feelings of anger, guilt, frustration, and depression. They
often feel isolated and believe that they are alone in their
struggle to conceive a child. There may also be feelings of
shame, inadequacy, guilt, or embarrassment about discussing
infertility issues. Infertility has a major impact on a person's
life and coping with it can at times be problematic. Many
patients benefit from talking with an advocate who can answer
their questions and provide emotional support for them in
a reasonably objective, yet totally caring way. Talking with
someone who understands what you are going through can have
a positive impact on your infertility experience, regardless
of your specific pregnancy outcome.
We encourage individuals to take advantage of the opportunity
to talk through feelings. Patients undergoing infertility
treatments differ in their reactions to test results and treatment
procedures depending on their gender, personality, and life
experience. Your doctor may at any point in your treatment
suggest that you talk with me. There is no charge to talk
with me and the meetings are confidential, although I may
have to let the doctor know that we have met. My role as patient
advocate is to figuratively sit across the desk from the physician
with the patient in a "lay person" capacity, offering empathy,
explanation, emphasis, and encouragement as necessary. The
advocate looks at all areas of the practice from the patient's
perspective, not the physician's, in an attempt to improve
areas as needed. The advocate is a liaison between the patient
and physician, embryologist, or other staff members and is
not a substitute for other members of the health care team
such as a psychologist or social worker. The advocate works
on infertility related issues in governmental and community
areas as well. I am also happy to serve as a resource for
you to locate a therapist or support group if necessary.
It is important to all of us here at the Center for Applied
Reproductive Science that we do the very best we can for you
during your treatment with us. Having a Patient Advocate in
the office to provide education, offer emotional support,
and smooth the "rough spots" that sometimes arise, is an integral
part of offering comprehensive quality medical care.
I hope to have the chance to meet you and help you have a
positive experience with our clinic. Please feel free to contact
me at the Center. 423-461-8880.
Luann Johnson, Patient Advocate
luann@ivf-et.com
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