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CARS Archives
Assisted Reproductive Technology: Recommendations for the Future of the Registry
Assisted Reproductive Technology: Recommendations for the Future of the Registry
Title:Profiling assisted reproductive technology: outcomes and quality of infertility management
Author: E. Steinberg et al.
Address:Baltimore, MD
Source: Fertility and Sterility 69:617-623
Summary:A comprehensive look at current assisted reproduction technologies (ART), performance evaluation of ART and performance enhancement suggestions are covered in this article, as well as a critical review of the American Society for Reproduction (ASRM) / Society for Reproductive Technology(SART) Registry. The registry is an initiative of a "proactive performance assessment" by a clinical specialty society (ASRM/SART). To be a member of ASRM/SART, an ART program must report their procedure activity data to the registry. Data validation is accomplished by a committee that performs site visits to ensure proper data collection. In the year 1994, SART acquired reported data on 42,509 ART treatment cycles at 249 centers in the US and Canada. The authors point out that a performance evaluation must focus on ÒprocessÓ and ÒoutcomesÓ of care. "Process" refers to the compliance with established standards or preferred patterns of practice. While providing for an acknowledgement of the diversity of physicians involved in infertility treatment, ASRM/SART guidelines neglect to define patient selection criteria or provide guidelines for diagnostic evaluation or ART procedure selection. ASRM/SART does attempt to address ÒoutcomesÓ by first addressing immediate outcomes such as: retrieval rates and fertilization rates and by reporting the "ultimate" outcomes of delivery, clinical pregnancy, abortion, singleton vs multiple birth etc. The weakness, the authors point out, is that "the failure to adjust for patients treatment history results in misleading indications as to the effectiveness of particular ART's and of the comparative effectiveness of particular centers". These outcome measures can be improved upon using the patient as the denominator by adjusting for the variation in patient characteristics such as: age, duration of fertility, presumed cause of infertility, treatment history and DES exposure. They also suggest that statistical significance of observed differences in events rates be indicated and that maternal age is recognized as a continuous, rather than dichotomous, variable in the case mix adjustment. This adjustment will help answer the key question for couples considering ART, "Of the women who undergo ART treatment, who are like me, what proportion deliver a healthy baby?"
In this article, ASRM/ SART are commended for their efforts to obtain standardized data on ART treatment procedures and outcomes in the registry initiative The value of these efforts will be recognized, according to the authors, if the above mentioned suggestions are implemented and when the necessary ÒprocessÓ portion or the guidelines currently lacking for ART treatment, are developed, allowing for a critical appraisal of the particular aspects of infertility management. Comment: In the next three weeks, there will be a series of "What's Up Doc?" addressing the issues of success rates, SART, and reporting. These are pivotal issues in the further development of this technology.

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